A variety of resources collected together .... and we can keep adding to .... not necessarily 'recommended' by ME Support Group Staffordshire Moorlands .... but maybe a place to start .... where you can look into things for yourself or gather further information .....
Disability Solutions offers a free,impartial and confidential service.
Clients can self-refer, families or carers can refer and other professional and health care agencies can signpost.
Disability Solutions West Midlands,
North Staffordshire Medical Institute,
Hartshill Road, Hartshill,
T: 01782 638300
F: 01782 637 959
The ME Association (The MEA), founded in 1976, funds and supports research and provides information and support, education and training.
In this role, we benefit people with ME (myalgic encephalopathy)/CFS (chronic fatigue syndrome), professionals and all others interested in the illness.
ME Connect is the telephone and email helpline service of The ME Association. It provides support for people with ME and those who live with or care for them. ME Connect provides a safe and understanding opportunity to people with ME so that they know they are being heard and understood.
ME Connect is a member of the Helplines Partnership which promotes high standards. It is open every day of the year between these times: 10am-12, 2-4pm, 7-9pm. Please phone 0844 576 5326.
You can also email ME Connect on firstname.lastname@example.org This is a good way of getting through to our medical and dental advisers. But otherwise this service is limited to giving factual information and to directing people to other sources of information.
Or you can write to ME Connect at Head Office
Action for M.E.
42 Temple Street, Keynsham, Bristol BS31 1EH
Tel: 0117 927 9551 (Mon to Fri 9am to 5pm)
Fax: 0117 986 1152
Members include: Action for ME
Association of Young People with ME
ME Research UK
The Association of Young People with ME (AYME) is a UK charity that provides support for children and young people aged up to 26 who have ME/CFS. AYME is also here to help and support parents, carers and professionals in health, education and social care.
Helpline and Information Service: Tel 0845 1232389 Open Mon-Frid 10am - 2pm. Email email@example.com
Support Group for Severe ME Sufferers - bedbound, housebound or virtually housebound
Tel: 01292 318611 - Office Hours 9.30 to 5pm - Monday to Friday
The National ME Centre - and Centre for Chronic Fatigue Centre
The National ME Centre
Long Term Conditions Centre (LTCC)
via Kings Park Estate
Essex. RM3 0AR
Telephone: 01708 796250
PO Box 4347
Telephone : 0845 003 9002Advice Line hours : 11am-1pm and 5pm-7pm Weekdays. Outside these hours you may leave a message and they will call you back.
UK charity campaigning for bio-medical research into Myalgic Encephalomyelitis (M.E.), as defined by WHO-ICD-10-G93.3.
They have links nationwide and also internationally. Invest in ME are one of the founding members of The European ME Alliance (www.europeanmealliance.org).
Invest in ME
PO Box 561
Hampshire SO50 0GQ
FAX: 02380 000040
The European ME Alliance is a grouping of European organisations who are involved in supporting patients suffering from myalgic encephalomyelitis (ME or ME/CFS) and are campaigning for funding for biomedical research to provide treatments and cures for ME.
The alliance was formed in 2008 by national charities and organisations in Europe.
The Alliance now has representatives from Belgium, Denmark, Germany, Holland, Ireland, Italy, Norway, Spain, Sweden, Switzerland and the UK.
ME/CFS is a debilitating neurological illness classified as such by the World Health Organisation under ICD-10 G93.3.
Our aim is to bring together a European lobby of groups to campaign for funding of biomedical research to establish an understanding of the aetiology, pathogenesis and epidemiology of ME/CFS. This should lead to the development of treatments to cure or alleviate the effects of the illness.
NICE Guidelines for CFS (National Institutue forHealth and Care Excellence)